Links



Unless specifically stated, Faith Rumph does not endorse any of the following Web sites. Always consult a physician or health professional for your own health needs and questions.

Web sites for Chronic Illnesses and Rare Illnesses


Blueball The Invisible Disabilities Advocate - "In order to create a better understanding of debilitating illness and illness, IDA provides informative articles, a booklet, links and a message board." - Site Web Master

Blueball Rest Ministries Chronic Illness/Pain Support - Lots of info, including how churches can start HopeKeepers groups.

Blueball Diseases Similar to Scleroderma (EF, EMS, Scleromyxedema...) - Contains EMS sites; EMS Stories solicited.

Blueball The National Eosinophilia-Myalgia Syndrome Network, Inc. - For those with the chronic disease EMS


Petitions relating to EMS, Similar Diseases, Legislation, Disability Issues, and Other Health Issues

Blueball Forgotten Disease - Support Research for Eosinophilia-Myalgia Syndrome: Ended Sept.1, 2002. Now we wait to see if NIAMS and Congress will do their part to help us. The online Petition got 713 valid signatures. Online Petition and paper signatures (from Paper Petitions) amounted to 1,421 total signatures sent to NIAMS and Congress. I received a letter from my senior senator and from NIAMS. We shall see what Congress and NIH do to help. Please consider writing your senators and representative about support for funding for EMS, rare diseases (including EMS), and autoimmune diseases (including EMS).

Letter from NIAMS (in response to the petitions)


The Internet Archive (contains old NEMSN Web site archives)


Blueball Internet Archive Wayback Machine- Go here, and you can view OLD versions of the National Eosinophilia-Myalgia Syndrome Network, Inc. Web site going back to about December 1996 onward for some years. It seems that after about 1998, the Archives do not contain the earlier material, such as doctor Q and A's, etc.

Disability Web sites; Social Security Disability; Free Meds


Blueball disABILITY Information and Resources - It includes a link on how to obtain free medications IF you qualify.

Blueball DRM Guide to Disability Resources on the Internet

Blueball The International Center for Disability Resources on the Internet

Blueball Social Security Administration Office of Disability - Disability Programs

Blueball Accessing Free Medication - The Patient's Advocate - You can learn whether you qualify for free meds.

Blueball NEW! Social Security Disability Secrets - Posted 2-3-07; Great advice and tips.

E-mail me for information or with comments: faith_rumph@yahoo.com
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